My Quest for a Cure

I was diagnosed with ALS in March of 2005. ALS destroys the nerve cells controlling muscles, ultimately causing complete paralysis while leaving mental function intact. Survival is typically two to five years after diagnosis, and no cure exists. Prior to my diagnosis, I had spent my life teaching people the importance of physical fitness and living an active lifestyle. Today, I am unable to walk on my own and can communicate only with the help of a sophisticated, eye-controlled computer. Without the support of my wife, children and friends, I would not have the strength to continue to fight.

The Muscular Dystrophy Association (MDA) is the world’s largest provider of funds for ALS researchers and we have partnered with them to organize the most comprehensive research fundraising effort ever – Augie’s Quest located athttp://www.augiesquest.com/ and have raised more than $19 million so far. I believe that ALS can be stopped, and you can help. Over the next few weeks, I will be posting my thoughts in here on research, communication and the impact that this disease has had on my family. One thing is certain, with the support of the Commissioner’s Office, every MLB team, and every on-field personnel member, this July 4th could mark a turning point in the fight against ALS. But ultimately, it is up to all of us to become involved and make a future where ALS can be stopped a reality.

-Posted by Augie Nieto

To Learn More about Augie’s Quest, the MDA and to Donate, visit http://www.augiesquest.org/MLB4ALS/



1 Comment

Augie,
My heart goes out to you. I lost my wife of 30 years almost seven years ago to ALS. Thankfully, the ALS association was a God send. They provided valuable insight and information to my wife in helping us to cope. Since that time, I have participated in several Walk to D’Feat fund raisers and donated to the ALS association. Now that I have retired, I have not donated through my workplace, which is a shame, as they used to match my donation. I am pledging $100 to your fund to fight this dreaded affliction.
Please share with your family that my prayers go out to you and your family.
God Bless, Sam Bexon

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